UPDATE – Carina was given the greatest gift of a new heart in April 2013 at Great Ormond Street Hospital. She is doing well and is enjoying being at home with her family.
Carina Marcangelo, who celebrated her first birthday on February 13th 2013, was diagnosed with cardiomyopathy in July last year and was treated at the Royal Brompton Hospital awaiting a heart transplant. She has been in intensive care for almost 7 long months.
Cardiomyopathy is a disease that damages the heart and, in Carina’s case, means her left ventricle has a thickened wall which stops the heart working as well as it should. Her old heart created an amount of abnormal heart rhythms, which if not treated can result in heart failure. Her old heart had already stopped beating on a number of occasions
In November, Carina was fitted with an implantable cardioverter-defibrillator (ICD) that gave a shock if her old heart goes into a dangerous rhythm. She is the youngest child in the UK to have had an ICD fitted, and since being implanted has had to shock her a significant amount of times. The device would normally last someone 7 years, Carina’s ICD had almost used up all it’s battery since being inserted in November.
Carina was put on the transplant list on the day of her surgery back in November and is now recovering from her transplant. Words cannot express the gratitude we have towards her donor family. Thank you xx